At the conclusion of the 2012 Transplant Games in Grand Rapids, a decision was made to form an Athletes Advisory Council. The role of the council will develop over time but the concept was to give a voice to athletes and participants who could make recommendations and provide advice based on best interest of the games. Currently members serve a staggered 2-year term so that way every year we have approximately half of our members as incumbents and half of our members newly elected.

Athlete's Advisory Council - June 2016 - Cleveland Ohio
 

East Region

Hillary Hoagwood - Maryland (2016-2017)

I am a two time liver transplant recipient. When was 15, I went on vacation with my parents. While on vacation, I went into acute liver failure and a coma. Basically I wasn't feeling well, took a nap, and woke up a week later with a new liver. That liver lasted for several years, but due to a complication with my hepatic artery I required a second transplant on March 1, 2001. I have been fortunate to be very healthy since then and have become an avid participant in the Transplant Games. Cleveland will be my 6th US Games, and I have also competed in 2 Winter World Games and 3 Summer World Games. I compete in swimming, tennis, volleyball, and when possible track. I am also a downhill/alpine skier.

I have also been blessed to connect with my second donor family, and they even came to the Games in Houston with me. The connection I have with my donor family has made me even more committed to the cause of organ donation and awareness. I do take my sports and training very seriously, and I take awareness super seriously and want to do all that I can to make the games a wonderful experience, for athletes and donor families and supporters alike.

Primary Sport: Tennis
Secondary Sport: Swimming

Patrick Kacani - Virginia (2015-2016, 2017-2018)

A native of Metuchen, NJ, I moved to Virginia in 1981 to attend the University of Richmond where I first met Matt Felix. We became soccer teammates, fraternity brothers and eventually roommates. On November 27, 2012 we became connected in a much different way when I donated nearly two thirds of my liver to Matt who was suffering with PSC. Today, both Matt and I are doing great!

I participated in my first Transplant Games in 2014 at Matt’s invitation as part of Team Liberty (NY-NJ-CT), each of us earning five medals. I may be the only participant to have been beaten by his own liver in a race, albeit by only two tenths of a second. In 2016 I am looking forward to competing in the Games as a member of Team Virginia. Matt and I were recently named by UNOS to be one of the "Faces of Transplant" and I am an active volunteer with Donate Life America and UNOS, working to promote organ donation awareness. I am currently serving on the Organ Procurement and Transplant Network (OPTN) Living Donor Committee and the Scientific Registry of Transplant Recipients (SRTR) Living Donor’s Collective’s Living Donor Advisory Committee.

I live in Richmond, VA with my wife Kim and children Ryan (23), Jenny (21) and Mollie-Aidan (10). While I no longer play soccer due to knee surgery and age (mostly age), I am an active runner and try to compete in as many 5K and 10K races as I can.

Email: pkacani@msn.com
Phone: 804-437-4737

Primary Sport: Track n Field
Secondary Sport: Swimming

Mike DiPiano - New Jersey (2015-2016, 2017-2018)

I received my Kidney Pancreas Transplant in 1998 at St. Barnabas Medical center in Livingston, NJ I have been a member of Team Liberty and have attended every transplant game since 2004. I have also attended world games in Bangkok and Gold Coast. Mike received his Kidney-Pancreas transplant in 1998 at St. Barnabus Medical Center in Livingston, New Jersey. Mike has been a member of Team Liberty and has attended every Transplant game since 2004. He has also attended World Games in Bangkok, Thailand and Gold Coast, Australia.

Mike has had a successful 34 year career as Athletic Director at St. Benedict’s Prep School, one of the most prestigious prep schools on the east coast, where he also served as the schools Head Wrestling, Baseball, and Soccer Coach. Under Mike’s leadership, the St. Benedict’s Prep Athletic Department has proven to be a great success. He has also held various positions such as President, Vice President, Treasurer of the Essex County Athletic Directors Association, Region and District Wrestling Coaches Association, and the New Jersey Independent School Athletic Directors Association.

Mike currently speaks at numerous affairs to help spread the success and need for organ donation and transplantation. Most recently, Mike enjoys speaking to teenagers at high schools all over the state of New Jersey about the importance of registering to be an organ donor on their driver’s license. His proven achievement in identifying creative fund-raising techniques and maximizing opportunities for student-athletes and staff is something that Mike is looking forward to bringing to the Athletic Council.

Primary Sport: Athletic Director >30+ years
Secondary Sport: Track n Field

George Franklin 3rd- Maryland (2013,2014-2015, 2016-2017)

George, a 1972 graduate of Frank W. Ballou Senior High School, in Washington DC, was experiencing some physical difficulties, his senior year, due to an undiagnosed kidney disease. George had it all planned out, preparing to enlist in the Navy or Air Force after high school. However, he became very ill and was hospitalized, first, in Hadley Hospital, then, transferred to the George Washington University Medical Center, both in Washington DC, where he was diagnosed with Glomerulonephritis, a disease where the kidneys' filters become inflamed and scarred and slowly lose their ability to remove wastes and excess water from the blood through the urine....and all this just weeks after graduation from high school.

George endured several different treatments for his kidney disease, including Peritoneal Dialysis and Hemo-Dialysis, the later for 6 hours a day, 3 days a week, and 9 surgeries over the course of three years. In April, of 1975, George had his first kidney transplant, which, sadly, had to be removed the next month. Then, the call came again, 6 months later, on November 4th, for another kidney transplant. George was VERY reluctant to go back into surgery, having just experienced 6 whole months without surgery, but, his Surgeon, Dr Glenn W. Geelhoed, was VERY insistent that THIS kidney was HIS kidney! The Doctor was RIGHT!

George was given a new chance at life and with this Second Chance, George has been very busy! He is an energetic participant in several Organ Donor Awareness activities, including attending the First International Transplant Games, in 1978, in Southsea, England. In 1980, he won his first Bronze Medal for Swimming at the 3rd International Games in New York City. George started attending the National Transplant Games in 1996, at the insistence of Christine Wilson, a recipient friend, and has amassed one Gold, two Silvers and 3 more Bronzes in the 5 National Games he's attended as a Competitor.

George speaks at countless health fairs and churches and is a volunteer for various Organ and Tissue Donation Education organizations, including the United Network for Organ Sharing (UNOS), the OPO Washington Regional Transplant Community (WRTC), in Falls Church, Va., the OPO Living Legacy Foundation (LLF) in Baltimore, MD., and the NKF of Western Maryland, where he currently resides.

George testifies that, because someone chose to sign an Organ Donor Card, the presence of a Merciful God and his faith in Him, strong family support and a GREAT surgeon, he's now had his kidney transplant for over 38 years!

In 2004, George started a Social Support Club called the Quarter Century Club. The members celebrate organ transplant longevity, as all of the members have had their heart, liver, lungs, bone marrow or kidney transplant for at least a quarter century...25 years! If you qualify for Membership, leave them a message at quartercenturyclub.org/ And, EVERYONE attending the Games is invited to the 2014 QCC Dinner Dance!!

Email: gef3rd@gmail.com

Primary Sport: Bowling
Secondary Sport: Swimming

Jim Mozingo - Maryland (2013,2014-2015, 2016-2017)

Mr. Mozingo received a kidney transplant from a deceased donor in May 2006 at the Johns Hopkins Comprehensive Transplant Center. Currently, Mr. Mozingo is the Team Captain of Team Maryland and a member of the Maryland Chapter of Transplant Recipients International Organization (“TRIO”). Since 2008, he has competed in every national Transplant Games and one state Transplant Games. Mr. Mozingo has won multiple medals at the Transplant Games competing in basketball, golf, and table tennis. Mr. Mozingo also served as the Team Captain for Team Nation’s Capital for the 2010 Transplant Games.

Mr. Mozingo works as the Controller for Covenant Life Church and serves as a board member and the golf coach of Covenant Life School. He also coached his daughter’s little league baseball and basketball teams for several seasons. Mr. Mozingo graduated from the College of William and Mary with a BBA degree in Accounting in 1985. Mr. Mozingo resides in Gaithersburg, Maryland with his wife and daughter.

Email: mozingojim@aol.com

Primary Sport: Golf
Secondary Sport: Table Tennis

Joelle Atkinson - Philadelphia (2017-2018)

My name is Joelle Atkinson and I am a kidney & liver transplant recipient. I was born with a rare kidney disease called Infantile Polycystic Kidney Disease. My kidneys were removed at 9 months and I received a transplant from my dad at the age of 18 months old.
My dad gave me a new lease on life. His gift allowed me to walk, talk, grow and dance. I began competing at the US Transplant Games in 1998 in Columbus, Ohio. Back then, there were no kids events and all kids were categorized as 17 and under. My mom brought age categories to the games, and since, it has been an event that kids and families love to attend.
Chronic rejection as well as progression of my illness caused me to need another transplant and in April of 1999, I received a kidney and liver transplant from a donor. Since that day, I have thrived. I danced in 11 dances in my dance recital just 5 weeks after surgery. Each year that I compete in the Games, I get healthier and more competitive.
During my college years, I have used the Games as a way to lose weight and get in shape. It is a community that I have grown up with and one that I have come to love. I have made friends from all over the world. I am nearly 20 years post-kidney/liver transplant and my health is thriving. I strive to remain healthy and active to show that transplantation works! I have also become an occupational therapist in hopes that I can help others like me continue to do the things that they not just have to do, but love to do!

Primary Sport: Swimming
Secondary Sport: Track n Field

South Region

Kim Jaques - Florida (2016-2017)

I'm a Boston-born, Florida-raised woman who received a heart/double lung transplant on June 14, 1996, at the age of 16, at St. Louis Children's Hospital due to advanced stages of Eisenmenger's Syndrome. I've been participating in the transplant games since 2002. I'm the itty bitty thing from Team Florida who's voraciously trading pins!! I enjoy sharing my story and offering advice and insight to those who are either on the waiting list or newly transplanted! Looking forward to being apart of this group, sharing and learning from each other!!

Email: kjacques@gmail.com

Primary Sport: Trivia
Secondary Sport: Cornhole

Sherrell Gay - Georgia(2017-2018)

Diagnosed at age 38 and after living with dilated cardiomyopathy for over seven years, it was time to explore listing for a heart transplant. The testing was positive and 6 weeks after listing I received my gift of life in 2002. Meeting Team Georgia members the next year gave me incentive to get involved with the games. Participating in cycling, table tennis, 5K, softball throw and 100 m dash, the 2004 - 2010 games increased my desire to support and promote organ donation awareness. In addition, directing the Georgia Transplant Foundation Mentor Project and volunteering with LifeLink of Georgia’s Transplant Awareness Group and Emory Heart Transplant Support Group inspired me more. In 2011, I developed a transplant complication and a second heart transplant was needed. On the list for 17 months - including 7 months waiting in the hospital and learning I also needed a kidney transplant kept me from the 2012 games. However, I wore my team uniform resting in my hospital bed watching the streaming opening ceremony. My gifts of life came in December 2012. As my health improved I was ready to join my transplant family again. For the 2014 and 2016 games, I added corn hole and then darts and bocce to my events. A filled pin vest and heart headband are guides for finding me during the games. I proudly display my medals (2006 bronze 20K cycling and 2016 gold bocce) along with the team pins in shadow boxes in my home office. I continue to volunteer with LifeLink of Georgia Transplant Advocacy Group, Donate Life Georgia, Emory Heart Transplant Team mentor and serve as Team Georgia’s co-manager. With my husband Tony, I enjoy traveling in our RV, going to Bluegrass Festivals, serving on the Boshears Memorial Fly-in Board of Directors and playing with our grandchildren. My other activities include reading, crafting, painting, organizing events, and playing the organ and piano but most of all I love sharing my transplant journey honoring the memory of both my donors. (I met my first donor’s family and was able to have his poster displayed at the games.) I am a retired nurse and have always lived in Waynesboro Georgia which is the Bird Dog Capital of the World. Now 60 years old, I am proud of every day, knowing how precious life is! My motto is Live life, Love life, Share life, Give life! It is a privilege to serve on the AAC with fellow recipient and living donor athletes.

Primary Sport: Cornhole
Secondary Sport: Table Tennis

Amy Frackowiak - Texas(2017-2018)

Amy Frackowiak was born and raised in the great state of Texas. She has been with her husband, Dan, for fifteen years and married for six of those years. They have two teenage boys, Christian and Jason. She was diagnosed with IgA Nephropathy when she was only sixteen and started dialysis when she was twenty-six. On May 18, 2009, she received a kidney transplant from Ninghe Zhang, a foreign exchange student from China. In 2011, after returning home from the games she received a letter from her donor’s parents who live in China. She continues to correspond with them today, often sharing stories of her experience at the transplant games.
Amy has participated in the U.S. Games since 2010 and attended the World Games in 2011. She enjoys competing in volleyball, basketball, the 5K, track and field but has also competed in swimming (as needed only basis). She competed in volleyball, basketball, track and field in junior high, high school and all five years that she has attended the games. Her two boys have been competitive swimmers for more than five years so she has some experience with swimming rules and regulations. This summer she will receive her certification as a certified swim official.
Amy recently received her Bachelor of Science in Healthcare Administration and works in communications for transplant administration in the Texas Medical Center. She volunteers for LifeGift and speaks at hospitals and clinics about organ, eye and tissue donation. She is currently the Team Manager and Treasurer of Team Texas – Texas Life Warriors. She had the honor of working with Brian Gilliam and Donna Esposito on obtaining a 501(c)3 non-profit designation for Team Texas – Texas Life Warriors.

Primary Sport: Track n Field
Secondary Sport: Basketball

Al Milek - North Carolina (2013-2014, 2015-2016, 2017-2018)

Retired Insurance financial officer and Boy Scout Leader Heart transplant July 2006 Transplant games participation 2008, 2010 and 2012 Team Captain Team Carolinas Grand Rapids 2012 Participation: swimming, biking. Track and field, 5K

Primary Sport: Swimming
Secondary Sport: Track n Field + Virtual Triathlon

Midwest Region

Holly Werlein - Michigan (2016-2017)

I am so happy and excited to have been chosen to be a part of the council :) I have a passion for the games and spreading organ donation a! My name is Holly Werlein and I'm 31 years old. I received my liver transplant on June 14, 2006 at the age of 21. I went into sudden liver failure, like Hilary. I just happened to be in the right place, Cleveland Clinic, at the right time. I remember 3 days of my hospital stay and never knew I needed a transplant until I woke up with one a week and half later. They never found out what happened to my liver. I had a pretty rough recovery and some rejection, but I am 9 years strong now!

I have been competing in the US and World Games since 2008. After my family and I went to the first Games in Pittsburgh, we were hooked! I usually compete in swimming, track and field and volleyball. I want to try some new events this year though. Here is a video I did with my donor family called, "I Like Organ Donors" http://ilikegiving.com/films/i-like-organ-donors Feel free to watch and share with others.

Email: hwerlein@hotmail.com

Primary Sport: Swimming
Secondary Sport: Volleyball

Jerry Missel - Michigan (2017-2018)

Jerry Missel is a husband, father of four and lives in West Michigan. He has been participating in the transplant games since 2006 (Lousville, Pittsburgh, Madison, Grand Rapids and Cleveland). He enjoys working in the steel industry as an operations manager for 2 plants one in Michigan and the other in Alabama. When not traveling or spending time with his family he is an avid cyclist, swimmer and enjoys just about everything you can do outdoors. He views the games as not only an incredible demonstration of the successful lives transplant recipients can achieve, but also as a strong (and needed) incentive for recipients to live an active lifestyle post transplant.

Primary Sport: Swimming
Secondary Sport: Cycling

JP Marzano - Illinois (2017-2018)

Coming Soon!


Primary Sport: Tennis
Secondary Sport: Racquetball

Pat Folkertsma - Michigan (2013-2014, 2015-2016, 2017-2018)

Pat is a three-time kidney transplant recipient. She received her first kidney from her brother Tim in 1971 and her second one from a non-living donor in 1984. Her current kidney was donated to her in 2001 from her best friend Shelly.

Her first games experience was at the 1982 World Games in Greece. In 1986, she competed in the first U S Transplant Games in Fort Worth, Texas. She has participated in all but one of the U S games and in several world games. Pat has competed in swimming events, tennis, shot put, ball throw, running relays, badminton, table tennis, and bowling. Even though she has won over 70 medals, Pat’s real goal is to help promote organ and tissue donation and to show how successful transplantation can be. She also enjoys renewing friendships and meeting new friends at the games.

She has served on several games committees at the state and national level and is excited to be a member of the Athletes Advisory Council. Pat is a volunteer for the Gift of Life. She believes the best way to honor her donors and promote organ donation is to live life to the fullest.

Primary Sport: Volleyball
Secondary Sport: Racquetball

West Region

Bob Skaggs - New Mexico (2016-2017)

I received a kidney on March27, 1996 from a lady who died of a severe stroke on March 25. The Transplant Clinic at UNMHospital told me that I had to exercise. I began swimming at age 10 and have continued off and on since then competing as a teen ager in Las Cruces, NM. Later on in life I joined the Masters swim program and competed in my mid thirties in many events. So it was a natural for me to get back in the water at age 59. I went to Salt Lake City shortly after the transplant and won 2 medals with hardly any practice. That was enough encouragement to continue and since then I have competed in about 15 summer games in the US and Australia, and three winter games in the US, Switzerland, and Italy skiing in downhill events.

Primary Sport: Swimming
Secondary Sport: Cycling

Bill Wohl - Southern California (2017-2018)

Bill Wohl, a former collegiate, professional athlete and successful businessman. His company has worked in custom integration worldwide from the Olympic Games, World Cup, Championship Golf, Championship Boxing, World Series, NBA finals,etc. In 1999 Bill had a massive heart attack with two 100% blockages for 7 hours destroying his heart muscle. When all organs failed his heart was removed. Replaced with a Total Artificial Heart. Then a "terminally ill FDA experiment for the next 159 days . In February 2000 he received the heart of a 36 yr old Hollywood actor/stuntman Brady Michaels. Brady had an accident on a TV set near by and became Bill's donor. Bill with a total artificial heart appeared in Novartis spring 2000 "Transplant Video Journal" which also had a story on the US Transplant Games. As a former swimmer, runner cyclist the hook was in.

By 2002 Bill was representing Team Arizona in Orlando, Fl. and the next year Team USA in Nancy, France. He began competing monthly in open competitions, and annually U.S Games, Canadian, Australian and World Games. In open events the "Race to Athens" Beijing "Haul to the Wall" . Annually "The Escape from Alcatraz" Triathlon, also Cycling, Swimming and Marathon events. Honored as Captain of Team USA Cycling 2007 Bangkok, 2009 Gold Coast. Accumulating in Transplant games 31 gold, 21 silver and bronze. Setting records in the pool and on the bike in the US, Canada and Australia.
Promoting Donor Awareness on the front page of USA Today, Cover of Life magazine, Nat Geo, People, History channel, Discovery channel, ABC, CBS NBC, PBS, Fox winning an Emmy for his story, etc. Bill has been blessed to mentor in our world transplant community. Promoting Organ Donation in North America, South America , Asia, Europe and Australia.
Bill was founder of the Arizona Donor License Plates in 2002 and his foundations World Transplant Triathlon Team in 2007. Their goal to show Transplantation works. Bill is always looking to make the path a little brighter and easier be it living donor, donor family, recipient or caregiver.

Currently he waits for heart number four. Listed for Transplant at Cedars-Sinai in LA.
He is training for Transplant again and brings some varied sport, work and foundation experience to our group.

Primary Sport: Cycling
Secondary Sport: Swimming

Secretary

Nancy Dodge - New Mexico (2013, 2014-2015, 2016-2017)

I am a young lady that has had passion for the outdoors, children’s education and the Transplant community. I have lived in Albuquerque all my life. Transplantation has changed my life in a way that I want to reach out to EVERYONE that will listen. Back in ‘84- no-one knew what Transplantation was! So then I was hooked! I have been an advocate to educate more of our diverse cultures here in New Mexico. American Indians, Hispanic and African Americans have learned, and willing to pass on our torch. I am still trying everyday to outreach as many people that will listen!


Email: dodge_n@aps.edu
Brother (William D Clark)donated Kidney, July 1984, 22 Years
Sister (Catherine Liparoto) donated kidney April 2006 8 Years
US Games -1992, 94, 96, 98, 2000, 02, 04, 06, 08, 10, 12, 14, 16
1 world games

Primary Sport: Track n Field
Secondary Sport: Table Tennis

Mark Graves - Southern California (2017-2018)

Coming Soon!


Primary Sport: Volleyball
Secondary Sport: Badminton

Chairman

TJ Maciak - Michigan

TJ is a two time kidney recipient who received the gift of life in 1994 and 1996 from anonymous, deceased, donors. He has spent the years since his transplant helping to spread the word about the importance of organ donation and has a goal to increase awareness as much as possible. Since TJ received the gift of life he obtained both an under graduate degree as well as a graduate degree in Computer Information Systems from Grand Valley State University. In 2012 he initiated the TJ Maciak Give Life Endowed Scholarship at GVSU to help those students in college -- who like him -- are waiting for, or had, a life saving transplant.

TJ has been participating in the transplant games since 1996 and has attended 6 world transplant games representing team USA. In 2011 when TJ heard that the US Transplant Games would no longer be held he did everything he could to not let the games be finished. Because of his determination, motivation and the attitude that the games were so important to so many people and they should go on, the Transplant Games of America were born and the legacy of the transplant community will hopefully continue for a long time to come!

Email: tj@transplantgamesofamerica.org

Primary Sport: Basketball
Secondary Sport: Volleyball

 

ALUMNI

* Denotes member was Re-Elected for another term